NFDI4Health (10/2020 – 09/2025)
There is a large number of clinical trials, epidemiological studies and other medical research projects each year which collect data about probands and patients, their diagnoses and therapies, and their environment according to a relevant research question. While the outcome of these research projects is often published, there is, however, no common way to publish metadata and data. Sometimes, metadata and data are not managed by a common format, such as Object Data Model or other available standards. Therefore, such data are often not findable, accessible, interoperable, and reusable. These FAIR criteria are immanent important making the research outcome transparent and reusable which is beneficial for medical research.
The goal of NFDI4Health is overcome these burdens by designing and implementing a concept for a federated research data infrastructure for personal health data. This work includes a common data structure for all this data, the federated data infrastructure itself, data protected / data privacy, and distributed analysis infrastructures allowing to include and compute the distributed data. We will show the functionality of all these aspects using a series of use cases.
NFDI4Health is a research project funded by the German Research Foundation (DFG). Further information can be found here.